Robot | Path | Permission |
GoogleBot | / | ✔ |
BingBot | / | ✔ |
BaiduSpider | / | ✔ |
YandexBot | / | ✔ |
Title | Home - Global FKRP |
Description | Home Select language: English Norsk Português Information for patients Patients’ Stories Information for doctors Current Research Useful information FAQs |
Keywords | N/A |
WebSite | fkrp-registry.org |
Host IP | 85.91.42.50 |
Location | United Kingdom |
Site | Rank |
US$286,774
Last updated: 2023-05-16 07:02:27
fkrp-registry.org has Semrush global rank of 36,908,292. fkrp-registry.org has an estimated worth of US$ 286,774, based on its estimated Ads revenue. fkrp-registry.org receives approximately 33,090 unique visitors each day. Its web server is located in United Kingdom, with IP address 85.91.42.50. According to SiteAdvisor, fkrp-registry.org is safe to visit. |
Purchase/Sale Value | US$286,774 |
Daily Ads Revenue | US$265 |
Monthly Ads Revenue | US$7,942 |
Yearly Ads Revenue | US$95,297 |
Daily Unique Visitors | 2,206 |
Note: All traffic and earnings values are estimates. |
Host | Type | TTL | Data |
fkrp-registry.org. | A | 599 | IP: 85.91.42.50 |
fkrp-registry.org. | NS | 3600 | NS Record: ns59.domaincontrol.com. |
fkrp-registry.org. | NS | 3600 | NS Record: ns60.domaincontrol.com. |
fkrp-registry.org. | MX | 600 | MX Record: 1 nmd2.servers.prgn.misp.co.uk. |
Home Select language: English Norsk Português Information for patients Patients’ Stories Information for doctors Current Research Useful information FAQs Contact us Newsletters Registration Login Global FKRP Registry The Global FKRP Registry is an international registry that collects genetic and clinical data about persons affected by conditions caused by mutations in the FKRP (Fukutin Related Protein) gene, namely Limb Girdle Muscular Dystrophy type R9 ( LGMDR9, formerly known as LGMD2I ), and the rarer conditions Congenital Muscular Dystrophy ( MDC1C ), Muscle Eye Brain Disease ( MEB ) and Walker-Warburg Syndrome ( WWS ). Login Register now The information collected will help with the identification of patients suitable for clinical trials and allow them to participate more easily. Patients from anywhere in the world can register. Since patients with FKRP mutations are rare, every single person counts! If you have Congenital Muscular Dystrophy (CMD) not related to an FKRP mutation, |
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